Presentation of the Centre
Koalicija udruga u zdravstvu KUZ is a non-governmental, non-for-profit national Alliance (umbrella patient organization) of patient organizations in the Republic of Croatia.
It was founded in 2004., with main goals in promotion of the active role of patients in healthcare, promotion of patients’ rights and obligations in the healthcare system, and active participation of patients in health public policies.
KUZ now has 39 member associations, of which 3 are national Alliances (MS, rare diseases, diabetes).
In 2016, KUZ formed the informal platform of cancer patient organizations Onkologija.hr, and started the process of bringing and adopting the first Croatian National Cancer Plan.
Through the Onkologija.hr, 18 cancer patient representatives were included in the making of the National Cancer Plan, which was finally adopted by the Croatian Parliament in 2020.
Kuz was also working with the Mission on Cancer by the European Commission, with organizing the focus group of cancer patients in which the patient experience and quality of life was stressed, and included in the European Beating Cancer Plan.
KUZ is a member of European Patient Forum, From Testing to Targeted Treatments Alliance (FT3 Alliance), European Lung Foundation, and was working with EFPIA on the EU-X-CT program (European Cross-border Clinical Trials).
KUZ has long lasting collaborations with professional societies, patient organizations, pharma industry and other healthcare stakeholders, both on the national and European and international level.
Main Research Activities
In 2019, in collaboration with cancer patient organizations from 12 Central and Eastern Europe countries and Medical School in Zagreb KUZ developed and conducted a survey on patient relevant outcomes in cancer care in 12 languages in 12 countries, with more than 16.500 participants.
On the national level, KUZ conducted several surveys on patient experience in cancer care, understanding of precision medicine, and experience of participation in clinical trials.
Core Facilities
KUZ has an office on the address Ulica kneza Trpimira 11, 10000 Zagreb, Croatia, with 60 square meters, from which it operates.